Marbella once again proved that it has a heart, as a golf tournament for The Butterfly Children’s Charity raised more than €17,000.
The Butterfly Children’s Charity was delighted to hold the tournament after five months of cancelled events due to the Coronavirus crisis. It is now able to continue with its events calendar and persevere with the important mission to raise funding to improve the quality of life for children with Epidermolysis Bullosa (EB). The money will be used to improve the quality of life for families with EB, a rare and currently incurable disease that affects 500 people in Spain. The Butterfly Children’s Charity is the only existing EB support organisation in the country.
Professional Golfers José Luis Sánchez Barrero and John Roethling were on hand to help with the 27 competing teams throughout the day with 155 golfers and 78 supporters participating in the event.Sadly due to the current restrictions a prize giving ceremony was unable to take place. A trophy for the winner and 16 prizes for the players with the highest scores in both the men’s and women’s categories were distributed individually along with prizes for all of the players who were able to complete the challenges set at each of the 18 holes.
“The current crisis has made everything incredibly difficult, but despite this it has been amazing to see the involvement of so many different people, supporters and businesses, all united to support a common cause. This tournament has helped to give us hope for the future, although sadly we are still struggling to cover our costs” said Ana Maria Ponce, Marketing and Fundraising Executive for the charity.
The financial damage caused by the pandemic has been totally unprecedented and the charity is facing extremely challenging times: income has fallen by 80% and this all important funding is key to continuing with the work to support families with a specialist team of nurses, social workers, psychologists and research assistants.
In order for the charity to support and shield families from the reality of living with this condition they need your help. Register now for up coming events, become a member, a volunteer or visit the website for further information on how you can help. https://www.pieldemariposa.es/en/i-want-to-help/make-a-donation/
The world has stopped because of the global pandemic, but babies with EB continue to be born and they need your help now more than ever before.